My son is in a wheelchair

Life has been crazy! You may have noticed that I haven’t been updating this website much over the last few months. I’ve been diligent to keep the weekly newsletter and Facebook going but it’s been pretty quiet here.

Photo from this summer.

I’ve written about my youngest son before. He is the one who had a bunch of food intolerances and a peanut allergy. Thankfully, a few years ago when we went for his annual allergy visit we were amazed to discover he was no long allergic to peanuts. His food intolerances were better too.

Now that same cute kid is in a wheelchair.

We still don’t know what exactly is wrong. He started having foot and ankle pain this summer. Sometimes he would limp and other times he was fine. We figured it was growing pains.

After school started this fall it got worse. He got to where he hobbled around. I got calls from the school nurse almost every day.

We saw specialists and got a lot of testing, no one could figure it out. Of course, all of that took weeks. Wait a couple of weeks for an appointment, then a week for the test, then a week for the reslults. Then one week he couldn’t put weight on one of his feet. Then next week, the other foot followed.

He is a seemingly healthy 6 year old who can’t stand. After hearing our referral to a neurologist would take months we went to the ER. They were wonderful and ran every test they could imagine. After 3 days they sent us home because they couldn’t figure it out.

That was a month and a half ago.

Before we got foot rests for the wheelchair.

We are thankful to have a great family friend and chiropractor who is helping us work with our family doctor to get answers. They are kind and patient and want to help our son and us deal with this crazy situation.

We are hopeful that the next few weeks will reveal some answers. I won’t share indepth medical information about my son online because he isn’t old enough to consent to that but I wanted you all to know why I’ve been absent.

My son has missed a lot of school, and continues to do so because of multiple appointments for physical therapy, doctor visits and tests. My husband and I have missed a lot of work too.

We are so thankful for all of you who come to this blog looking for recipes and meal plans. Every time you visit it helps my family because of the ads on this site that generate revenue. Even though you didn’t know it, your visit helped meet a need. Thank you!

Some of you saw my posts on Instagram and offered to pray. We thank you! We know that are thousands of people praying for him, many are people we’ve never met.

Friends and family have asked how our son is doing. Most of the time he is doing really well. He instinctively took to his wheelchair immediately and that made things easier. Other times he struggles, as we do, to deal with this. Just imagine how you would feel if you couldn’t stand or walk and didn’t know why or how to fix it. It’s a lot to deal with.

It may be a while before I’m back consistently. Follow me on Facebook and Instagram and I’ll continue to share recipes, tips and updates. You can get plant-based tips every Saturday morning by signing up for my weekly email.

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Comments

  1. Thank you for sharing your story. You said they ran every test so I am sure Lyme was one? My son had undiagnosed Lyme disease that went undetected for years thought his joint pains were just sports related until one day his knees basically wouldn’t work. Your family will be in my prayers and I will pray diligently that you find the answer you need for your son’s health.

  2. Karen Joseph says:

    Oh, I’m so sorry! I hope you get answers soon! Sending you my best. 💗

  3. Sending thoughts and prayers to your son and the family. What a cutie!

  4. Thank you for sharing your story. You are obviously doing all the right things. I will keep your son and your family in my prayers. Hopefully, the doctors will find an answer soon. Hope your Holidays are filled with love, joy, and peace.

  5. Praying for you!!!

  6. Karen Morton says:

    So sorry to hear this. Prayers and thoughts for your son and family. God bless

  7. Kim Booker says:

    My prayers are with you and family. Thank you for sharing your journey with your readers. God works in mysterious ways but always for our ultimate good. I’m praying for healing for your son. I Know all prayers are answered from my own personal devasting experience 😊. Keep the faith and Have a Blessed Christmas and Thankful New Year’s.

  8. I’m so sorry to hear this. You all will be in our prayers.

  9. I’m so sorry to hear you’re going through this. I know this must be taking a toll on you. I’ll keep you in my prayers. Hoping they figure this out soon.

  10. I will be praying for your son. Thank you for all your post. Really enjoy them. Merry Christmas

  11. I am so sorry to hear what your family is going through. I will be sending healing thoughts.

  12. Thank you for sharing, praying for answers and healing, strength for you all during it all ❤

  13. Vicki Smith says:

    Will pray for your son, Holly and all of your family and doctors, that you will get answers quickly to help your son recooperate and be well…

  14. I’m very sorry to hear of your son’s illness. I send to your son and you daily healing thoughts in my meditations.

  15. Father, we lift up this precious boy and ask that the doctors will have the wisdom to diagnose what’s happening and that the condition will be easily treatable. We place him in your hands and ask for pain relief and for a good outcome. We also ask that the entire family will feel at peace and be filled with patience as they go through the uncertainty of this trial. We pray in the name of Jesus our great healer, amen.

  16. Praying you find answers! I just read something very similar to your story..this woman’s daughter was through all the tests, several specialists, etc. After months and months, it turned out to be Juvenile Arthritis. Not sure if that’s been checked but your stories sound so similar that I felt like I should mention it.

  17. Melinda Green says:

    Praying that the DR’S will find the cause and that you and your family might have some peace through all of this craziness.

  18. Jacqui Pappas says:

    Sending hugs, prayers and positive thoughts your way. Merry Christmas to you and your family!

  19. Very sorry to hear the challenges you are going through with your son. It appears you have been diligent in trying to discover the root cause of his problem. You may want to look into possible vaccine “damage” if your child has been vaccinated. Do research about what’s in them and the possible side effects. A good place to start is naturalnews.com. I hope your journey ends in you finding “truth” and answers to heal your son COMPLETELY.

  20. Long Haired Hippie says:

    Your son and family are in my thoughts. Though its a long shot i want to share a condition with you called ehlers danlos syndrome. It often presents with allergies, food intolerances, easy injury, poor healing, and hypermobility.

    Boys tend to show hypermobility earlier than girls and sometimes to a more severe degree often affecting the lower limbs first.

    I share this because it is an orphan disorder i share, that put me in and out of wheelchairs from a young age and was misdiagnosed for 20 years. I was treated her terribly by doctors after many negative tests results because the issue is in my genes.

    I was ONLY diagnosed because a long term internet pal had a friend with EDS and mentioned the symptoms i shared. Whatever the cause i hope its found soon.

  21. My first thought was Rheumatic fever, because my brother had that as a child. I hope you find answers!

  22. Have you looked at vaccines been the problem behind your sons issues? I have read stories similar to yours and I know people, personally, that have issues due to vaccines.

    Look into Vaxxed TV on YouTube.
    Another site is http://www.vaccinesrevealed.com/

    I am sorry your family is going thru this ordeal. Prayers out to you.

  23. I am so sorry your family is going through this. I pray you find answers soon. Our son had some difficult challenges as well and we couldn’t find any answers until we went to a MD who practices functional medicine. You can search for a certified IFM practitioner in your area here:
    https://www.ifm.org/find-a-practitioner/

  24. Hey Holly. Just found your site. So sorry to hear about your son. I can’t imagine how trying things are right now for you, your family, and your son, of course. He looks like a champ, though. Hopefully, our healthcare system will get to the bottom of his ailment soon. He’ll be in my prayers.

  25. Long shot and you may have already had the testing, but my daughter was born with a mild form of spina bifida that often has no outside signs or symptoms called tethered spinal cord. It pulls on the nerves during growth spurts and can cause some of the same symptoms you mention your son is having. It may be worth seeing a neurosurgeon (not neurologist.) good luck and my prayers are with you!

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